What programmes are needed to improve self-esteem among young people with disabilities?

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Question & problem

Due to negative societal attitudes and ableist norms, young people with disabilities may be at risk of low self-esteem. Low self-esteem, aside from being unpleasant to experience, is associated with social isolation, low mood, and poor educational outcomes. Building positive self-esteem is critical for young people to reach their full developmental potential, and so identifying interventions that work to improve self-esteem among young people with disabilities is important. However, information on programmes that work to improve self-esteem, especially in low-and-middle income counties (LMICs), is lacking. There is a need for programming to improve self-esteem and build confidence which takes into account disability as well as personal and environmental factors of young people.

Quote

“There is a high incidence of mental problems among children and young people, and high self-esteem may protect against such problems.”
- Ekeland et al., 2004

Recommendations

Develop self-esteem interventions which accommodate people with a range of impairments and take into account the personal and environmental contexts of young people with disabilities in LMICs.

Key recommendation

Develop self-esteem interventions which accommodate people with a range of impairments and take into account the personal and environmental contexts of young people with disabilities in LMICs.

Action

  • Develop and deliver interventions which address the multidimensional determinants of low self-esteem, including social exclusion.
  • Adapt interventions to take into account different types of disabilities to ensure accessibility for all.
  • Adapt interventions according to the type of stigma and discrimination young people with disabilities might face.
Implement evidence-based self-esteem interventions in LMICs that are flexible, promote active participation, and provide opportunities for recreation and enjoyment for young people with disabilities

Key recommendation

Implement evidence-based self-esteem interventions in LMICs that are flexible, promote active participation, and provide opportunities for recreation and enjoyment for young people with disabilities.

Action

  • Evaluate the effectiveness of self-esteem interventions which aim to increase leisure participation, friendships, and quality of life among young people with disability.
  • Include both young people with and without disabilities in interventions.
  • Prioritise interventions that emphasise the role of social adjustment, academic motivation, and the emotional competency of young people with disabilities, all of which heavily influence opinions and beliefs about themselves.
  • - Prioritise young people with disabilities’ opinions in the design and delivery of programmes so as to meet real needs and draw on existing capacities and redistribute power between adults and young people.
Engage in rigorous research to test the effectiveness of self-esteem interventions, with a focus on understanding effects on people with different types of impairment.

Key recommendation

Engage in rigorous research to test the effectiveness of self-esteem interventions, with a focus on understanding effects on people with different types of impairment.

Action

Address the disability-specific dimensions of self-esteem through responsive programming, focusing on inclusive frameworks, and social models instead of approaches focusing on mental health ‘deficits’.

Engage in research that explore the under-representation of boys in interventions hence gender must be considered as a key consideration in the success or failure of self-esteem interventions

Explore innovative ways to include caregivers and teachers in programming, and expand reach, including through inclusive digital platforms.

Key recommendation

Explore innovative ways to include caregivers and teachers in programming, and expand reach, including through inclusive digital platforms.

Action

  • Increase awareness of bias and prejudice towards young people with disabilities and train caregivers and teachers to implement school climate programmes which combat these.
  • Ensure that caregivers, teachers, and young people with disabilities actively participate in establishing the feasibility, acceptability, sustainability, and impact of interventions.

Challenges

Challenge #1: Negative attitudes towards young people with disabilities influence their self-esteem.

  • The majority of the self-esteem improving interventions found in the literature are performed in non-mainstream settings, limiting opportunities for interaction between peers with and without disabilities which can improve emotional peer support practices for young people with disabilities.
  • There is no clear picture on the extent to which peer interactions happen for young people with disabilities in settings such as the classroom, school, and outside intervention contexts which highlight the motivational factors that can be building blocks to means of participation, involvement, and self-expression within peer group self-esteem improving programmes.   

Challenge #2: The evidence base for self-esteem interventions is limited, and mostly based on studies in high-income countries (HICs)

  • As the majority of self-esteem interventions for youth with disabilities have thus far been implemented in high income countries (HICs), the effectiveness and cost-effectiveness of these programmes is not well-established in LMICs.
  • Current evidence-based self-esteem interventions lack approaches that target different levels of young people with disabilities’ environments (families, communities, schools, and organisations such as education, health, OPDs and NGOs), which is crucial in LMICs.
  • There is also limited data on young people with disabilities’ perspectives on participating in self-esteem interventions. 

Challenge #3: That research which does exist has limitations which impact our understanding of effectiveness and best practices for implementation  

  • For self-esteem interventions to be successful, they must reflect the norms, culture, context, and constraints of LMICs, but there is a gap in the research regarding key challenges, identified needs, and successful/unsuccessful programmes.
  • Environmental factors such as family social demographics, accessibility, and community support for interventions and young people with disabilities affect attendance at and participation in intervention in LMICs, but because of the lack of research in these settings, evidence on their influence is lacking.
  • Existing trials in interventions that improve self-esteem are small scale and often lack data or opportunities to explore differences in participant outcomes based on sociodemographic characteristics such as disability type.
  • Programming approaches also often rely on delivery through institutions such as schools, specialist centers, and medical facilities, and these are concentrated in urban areas.
  • Self-esteem intervention trials may demonstrate the social and economic importance but the extent to which effects are maintained over time is unclear.

Challenge #4: Interventions to improve self-esteem tend to be elective and short-term

  • Interventions to improve self-esteem tend to be self-selective, and so oversubscribed by those who are willing to participate, leading to an under-representation of boys in such programming.
  • Self-esteem interventions which solely target young people with disabilities may not have impacts on social inclusion, possibly contributing to isolation and undermining peer relationships.
  • Short-term self-esteem interventions do not account for the impact long-term participation in programmes have on young people with disabilities’ attitude towards school and self-concept, thus making it hard to measure improved academic performance or improvement in longer term wellbeing and mental health.
  • Targeted interventions implemented in mainstream schools may fail to reach young people with disabilities attending mainstream schools as useful knowledge about peers who offer and receive support or whether these are young people with disabilities is limited.

Finding the answers

We conducted a review of reviews, examining systematic, narrative, and other types of review evidence on interventions that work to improve self-esteem in young people with disabilities. This evidence note is based on the findings of 5 reviews from HICs, 1 review from both HIC and LMIC evidence, and 1 review which covered literature from LMICs.

Recommendations & actions

Develop self-esteem interventions which accommodate people with a range of impairments and take into account the personal and environmental contexts of young people with disabilities in LMICs.

Key recommendation

Develop self-esteem interventions which accommodate people with a range of impairments and take into account the personal and environmental contexts of young people with disabilities in LMICs.

Action

  • Develop and deliver interventions which address the multidimensional determinants of low self-esteem, including social exclusion.
  • Adapt interventions to take into account different types of disabilities to ensure accessibility for all.
  • Adapt interventions according to the type of stigma and discrimination young people with disabilities might face.
Implement evidence-based self-esteem interventions in LMICs that are flexible, promote active participation, and provide opportunities for recreation and enjoyment for young people with disabilities

Key recommendation

Implement evidence-based self-esteem interventions in LMICs that are flexible, promote active participation, and provide opportunities for recreation and enjoyment for young people with disabilities.

Action

  • Evaluate the effectiveness of self-esteem interventions which aim to increase leisure participation, friendships, and quality of life among young people with disability.
  • Include both young people with and without disabilities in interventions.
  • Prioritise interventions that emphasise the role of social adjustment, academic motivation, and the emotional competency of young people with disabilities, all of which heavily influence opinions and beliefs about themselves.
  • - Prioritise young people with disabilities’ opinions in the design and delivery of programmes so as to meet real needs and draw on existing capacities and redistribute power between adults and young people.
Engage in rigorous research to test the effectiveness of self-esteem interventions, with a focus on understanding effects on people with different types of impairment.

Key recommendation

Engage in rigorous research to test the effectiveness of self-esteem interventions, with a focus on understanding effects on people with different types of impairment.

Action

Address the disability-specific dimensions of self-esteem through responsive programming, focusing on inclusive frameworks, and social models instead of approaches focusing on mental health ‘deficits’.

Engage in research that explore the under-representation of boys in interventions hence gender must be considered as a key consideration in the success or failure of self-esteem interventions

Explore innovative ways to include caregivers and teachers in programming, and expand reach, including through inclusive digital platforms.

Key recommendation

Explore innovative ways to include caregivers and teachers in programming, and expand reach, including through inclusive digital platforms.

Action

  • Increase awareness of bias and prejudice towards young people with disabilities and train caregivers and teachers to implement school climate programmes which combat these.
  • Ensure that caregivers, teachers, and young people with disabilities actively participate in establishing the feasibility, acceptability, sustainability, and impact of interventions.

Policy priorities

Policymakers and relevant stakeholders in local government, organisations of persons with disabilities (OPDs), young people with disabilities, communities, social groups, unions, educational officers, and disability researchers need to be more aware of the role which self-esteem plays in young people’s development. The drivers of poor self-esteem among young people with disabilities need to be targeted with policy at multiple levels, addressing the full range of determinants.

Conclusion

Many young people with disabilities experience low self-esteem, and this may negatively affect their quality of life. While information on what types of interventions work to improve self-esteem among young people with disabilities in LMICs specifically is limited, there are clear directions for future work which will contribute to the growth of the knowledge base, and practice.

Gaps & research needs

There is an urgent need for more rigorous evaluations of self-esteem interventions in LMICs, including exploration of how programmes which are not targeted at youth with disabilities can be adapted to be inclusive and address the specific drivers of low self-esteem in this group. It is also important for studies to explore the clinical meaning, and refine the design and implementation of existing interventions.

Acknowledgements

Peer Review: This brief has been peer reviewed by Dr Michelle Botha, Research Fellow at the Center for Disability and Rehabilitation Studies at Stellenbosch University, and Kirsty Smith, CEO of CBM UK & BasicNeeds.

Publication details: © London School of Hygiene & Tropical Medicine, March 2023.

Suggested citation: Sihle Mamutse and Xanthe Hunt. Evidence Brief: What research is needed to improve self-esteem among young people with disabilities? [Disability Evidence Portal], 2023.

Disclaimer: The views expressed in this publication are those of the author/s and should not be attributed to Disability Evidence Portal and/or its funders.